Day 18: #HAWMC: I take it back!!

Sometimes when your tired and don't feel like dealing with something the wrong words come out.

Now, I must write this disclaimer as it's the posts fault. I have truly gotten over this issue. I just had to bring something out so I would have something to blog about today. So it may sound like I'm holding a grudge but truly I was over it as soon as it was said. 

In our family unit I am grateful to be able to stay at home with my kids during the day and work about 3 evenings throughout the week. It gives me freedom to be able to take the kids to their Dr appointments, or if they are sick or if the nurse calls and there is an issue at school. It gives me freedom to make some money, feel as if I am contributing to the family income and gives me some sanity. Most of all I do it for sanity reasons but I digress... My hubby works during the day 40+ hours a week and a lot of times he comes home and I high five him out the door to go to my job. Things had been crazy one day while I was home with Jackson (he had to be around 2 at the time...he's 5 now) and we had been inside all day doing whatever. It was springtime and the day had turned out to be pretty nice. I felt bad about not taking him out but thought my hubby could take him outside that evening. Or so I thought...

Seriously, I am sooo over this...It's gonna sound snarky and I have not held a grudge...seriously...I'm cool with it all!

Well, hubby comes home and he's tired and just wants to take a nap (don't we all?!!?). I suggested he could take Jackson out to let him play for a little while since it was so nice. (Just a little background here...we have a side yard that of course has a grassy area but has a concrete patio as well.) His comment to me was something to the effect of that not being a good idea. I kinda knew where this was headed. I didn't like it and I'm getting tired too so I'm getting a little aggravated. So I played dumb...

Me: "Why would going outside not be a good idea?"
Him: "Well, you know, he's a hemophiliac...he might fall...he might get a bleed."

To which I replied, that is the STUPIDEST thing you've ever said!! What!?!? Should we bubble wrap him!! Keep him inside!?!? I guess we shouldn't let him walk...EVER!! Pfft...get him outside and let him play.

My poor husband knew as his words came out of his mouth he had messed up big time. We have the motto: Treat the Hemo not the boy! In other words... let the kid LIVE. He ended up apologizing not that long after he spoke those vial words and chalked it up to being over tired. I immediately forgave him but made him promise to never say anything that stupid again.

And he hasn't!

Day 12 #HAWMC: Hindsight

"What have you learned about being a caregiver that has surprised you most?"

That we (my hubby and I) can do it.

We can  take care of all three of our kids and their chronic illness.

I always joke with my hubby that we need an honorary nursing degree...between Type 1 diabetes and hemophilia we have it covered.

If you would've told me 10 years ago that I would be sticking my kids with needles, administering IV infusions, fighting with health insurance, meeting with lawmakers, advocating at schools, writing blogs, meeting amazing people in our chronic illness community, living and breathing diabetes and hemophilia I would've told you, YOU'RE CRAZY!!

But here I am, here we are, raising our kids despite their chronic illness and thriving...LIVING.

Jackson giving Daddy an "IV" of factor. 

Day 11 #HAWMC: Favorites

What is my favorite social network? Facebook, Twitter, Pinterest?

I LOVE Facebook...ask anyone who knows me, even if they don't know me that well, that I post and share a LOT on Facebook. When I first joined it was at the urging of my then high school aged daughter. She had an account and told me to join. I did. It was more for keeping tabs on her (not that I needed too) and reconnecting with old friends. At some point I started using  Facebook as an outlet to inform, educate and advocate. It became my voice in social media. It connected me to the bleeding community. It offers me hope when my son has a bleed and I need someone to understand what I'm going through...who gets it.

I have a Twitter account too...I try, I do. I post on there as well but don't check it very often. There is just something about being limited to 120 characters. I can't be limited.

I have a Pinetrest as well but there are not enough hours in my day for Pinterest. I thought I would use it for displaying posts about the kids chronic illnesses but then found a plethora of ALL kinds of fun things. I've used it for birthday party, events, baby showers and recipes. I've made some pretty awesome dinners thanks to Pinterest. But I try and stay away...it would suck me in forever and nothing would get done around here!

If you want to add me as a friend you can find me as Jen Hamilton Loving. At a meeting the other night someone said, "if your not following Jen on Facebook...your missing out!" So I'll stick with my Facebook and keep informing, educating and advocating for Hemophilia.