HEMOPHILIA
Showing posts with label severe A. Show all posts
Showing posts with label severe A. Show all posts
Wednesday, April 17, 2013
Monday, April 1, 2013
Day 2 #HAWMC: Introducing Hemophilia
Today's blog challenge is: Introduce your condition to others. What are 5 things you want people to know about your condition.
"Well...Everyone, meet Hemophilia; Hemophilia, meet Everyone."
For those who have never met Hemophilia it is a bleeding disorder that is most usually found in males. It is genetic yet can occur through a spontaneous gene mutation. In a nut shell Hemophilia is a disorder in which your blood will not clot. There are different types of bleeders, if you will. There are mild, moderate and severe. There are Type A's and B's. There are Factor 7,8,9 and 10 deficient levels and then there are inhibitors. While back years ago the life expectancy was not good for Hemophiliacs my son, who is Severe A, Factor 8 deficient, has a normal life expectancy. He is treated twice weekly (sometimes more if there is a bleed) of a medicine through an IV infusion that helps his blood clot. Studies have discovered that treating proactively helps prevent bleeds or at least catches them sooner. Early treatment is helpful in less joint damage and better overall recovery.
5 things I would like you to know about Hemophilia:
1. My son will NOT bleed to death from a paper cut.
2. My son CAN do anything your kid can do...he may just need to infuse before or after an activity.
3. You DON'T need to bubble wrap a Hemophiliac.
4. Hemophiliacs DON'T just bleed out. They can have spontaneous joint or muscle bleeds. So even though you may not see blood...there can still be a bleed.
5. Yes, my child may be covered in head to toe bruises but we DON'T beat him...he is a bleeder...this means he will bruise more than your typical kid.
Thanks for dropping by and meeting my son's health condition...Hemophilia.
"Well...Everyone, meet Hemophilia; Hemophilia, meet Everyone."
For those who have never met Hemophilia it is a bleeding disorder that is most usually found in males. It is genetic yet can occur through a spontaneous gene mutation. In a nut shell Hemophilia is a disorder in which your blood will not clot. There are different types of bleeders, if you will. There are mild, moderate and severe. There are Type A's and B's. There are Factor 7,8,9 and 10 deficient levels and then there are inhibitors. While back years ago the life expectancy was not good for Hemophiliacs my son, who is Severe A, Factor 8 deficient, has a normal life expectancy. He is treated twice weekly (sometimes more if there is a bleed) of a medicine through an IV infusion that helps his blood clot. Studies have discovered that treating proactively helps prevent bleeds or at least catches them sooner. Early treatment is helpful in less joint damage and better overall recovery.
5 things I would like you to know about Hemophilia:
1. My son will NOT bleed to death from a paper cut.
2. My son CAN do anything your kid can do...he may just need to infuse before or after an activity.
3. You DON'T need to bubble wrap a Hemophiliac.
4. Hemophiliacs DON'T just bleed out. They can have spontaneous joint or muscle bleeds. So even though you may not see blood...there can still be a bleed.
5. Yes, my child may be covered in head to toe bruises but we DON'T beat him...he is a bleeder...this means he will bruise more than your typical kid.
Thanks for dropping by and meeting my son's health condition...Hemophilia.
Why I Write...
Hello Everyone! We've just come off March as raising awareness for Hemophilia. I tried very hard to post, on my personal facebook page something almost everyday about Hemophilia. In doing so I tried to educate my friends and family about Hemophilia and its causes, problems and daily life. I've decided to participate in the WEGO Health Challenge this month. I will be writing, with the help of some daily prompts given by WEGO Health. I hope you enjoy my month long blogging!
Today's prompt is Why I Write:
That's easy...I write for my son, Jackson who has severe Hemophilia A, Factor 8 deficiency. He came into this world with a 50/50 shot of being a hemophiliac...and has taken to his "normal" like a champ. Be it a challenging champ at times but a champ all the same. I write for my family and friends to understand what our lives are like. I don't want sympathy or pity...I want to educate. I don't want my son excluded from things or treated differently. There is no need for all that! With a few precautions and a little planning he can do anything!
I found WEGO Health's Writers Challenge last year when I was blogging for the Blue Heel Society, a group of fab people who advocate for diabetes, as I have two daughters with Type 1 Diabetes. So I thought...why not do the same for Hemophilia? So here I am writing to you about Hemophilia...enjoy!
Today's prompt is Why I Write:
That's easy...I write for my son, Jackson who has severe Hemophilia A, Factor 8 deficiency. He came into this world with a 50/50 shot of being a hemophiliac...and has taken to his "normal" like a champ. Be it a challenging champ at times but a champ all the same. I write for my family and friends to understand what our lives are like. I don't want sympathy or pity...I want to educate. I don't want my son excluded from things or treated differently. There is no need for all that! With a few precautions and a little planning he can do anything!
I found WEGO Health's Writers Challenge last year when I was blogging for the Blue Heel Society, a group of fab people who advocate for diabetes, as I have two daughters with Type 1 Diabetes. So I thought...why not do the same for Hemophilia? So here I am writing to you about Hemophilia...enjoy!
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