Day 2 #HAWMC: Introducing Hemophilia

Today's blog challenge is: Introduce your condition to others. What are 5 things you want people to know about your condition.

"Well...Everyone, meet Hemophilia; Hemophilia, meet Everyone."

For those who have never met Hemophilia it is a bleeding disorder that is most usually found in males. It is genetic yet can occur through a spontaneous gene mutation. In a nut shell Hemophilia is a disorder in which your blood will not clot. There are different types of bleeders, if you will. There are mild, moderate and severe. There are Type A's and B's. There are Factor 7,8,9 and 10 deficient levels and then there are inhibitors. While back years ago the life expectancy was not good for Hemophiliacs my son, who is Severe A, Factor 8 deficient, has a normal life expectancy. He is treated twice weekly (sometimes more if there is a bleed) of a medicine through an IV infusion that helps his blood clot. Studies have discovered that treating proactively helps prevent bleeds or at least catches them sooner. Early treatment is helpful in less joint damage and better overall recovery.

5 things I would like you to know about Hemophilia:

1. My son will NOT bleed to death from a paper cut.

2. My son CAN do anything your kid can do...he may just need to infuse before or after an activity.

3. You DON'T need to bubble wrap a Hemophiliac.

4. Hemophiliacs DON'T just bleed out. They can have spontaneous joint or muscle bleeds. So even though you may not see blood...there can still be a bleed.

5. Yes, my child may be covered in head to toe bruises but we DON'T beat him...he is a bleeder...this means he will bruise more than your typical kid.

Thanks for dropping by and meeting my son's health condition...Hemophilia.