It's meeting other people in the bleeding disorder community. We are such a small group but we are mighty. Meeting someone who knows what you have been through is exciting. While I hate that they know what we have been through they get "it". They understand the heartbreak of having to stick their child with an IV needle or access a port to administer the blood clotting factor. They get why your kid is covered in bruises...and no, it's not because you beat them! They understand your insurance frustrations. They know your fears of the cost associated with taking care of a hemophiliac. The get the worry of job security because you have to take yet another day off work due to a clinic visit or a bleed. They get all of that! It is comforting to know that I have someone to vent to outside of my home and they completely understand and know that I'll be there for them when the tables are turned. Together, the bleeding disorder
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| Jackson and his hemophilia buddy, Austin and his sister Adalyn...our extended Hemophilia Family!! <3 |
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